A press meet was organized on 5th May 2026 to brief print, electronic, and digital media representatives about Thalassemia, its prevention, treatment, and the activities planned for International Thalassemia Day 2026. The interaction emphasized the importance of carrier screening, antenatal testing, voluntary blood donation, and Bone Marrow Transplantation as a curative option for Thalassemia Major.
The first batch of TSCS patients successfully completed their Job Assistance Training Program at Dr. Reddy’s Foundation.
We are proud to share that a few of them have also secured job placements! 🌟
The Thalassemia and Sickle Cell Society (TSCS), Hyderabad, observed World Sickle Cell Day on 28th June 2025 with a heartwarming and empowering celebration dedicated to children and families affected by Sickle Cell Disease. The event served as a reminder of the strength within this community and the importance of awareness, care, and compassion.
The event began with a gracious Welcome Address by Dr. Chandrakant Agarwal, President of TSCS, who extended his heartfelt greetings to all the attendees. He reiterated TSCS’s steadfast commitment to improving the lives of those affected by hemoglobin disorders and called for greater awareness, early screening, and community participation in addressing Sickle Cell challenges across India.
This was followed by an inspiring Message by Dr. Suman Jain, Chief Medical Research Officer and Secretary, TSCS. Dr. Jain praised the resilience of the children and families present and emphasized the role of TSCS not only in clinical care but also in emotional and social support. She encouraged everyone to continue spreading awareness and standing together in solidarity for a better future.
The program was further enriched by two thought-provoking motivational talks.
Mrs. Surbhi Sharma, Assistant Professor of Law at NALSAR University of Law, who is Sickle Cell Warrior, emphasized the importance of legal empowerment, patients’ rights, and the role of inclusive public policy in healthcare access.
Dr. Subodh Kumar Karmanker, MBBS, RIMS Adilabad, who is Sickle Cell Warrior brought in valuable insights from the field, speaking about the challenges and solutions for managing Sickle Cell Disease, especially in tribal and underserved communities.
Adding joy to the occasion, fun and games were organized for the young patients, filling the room with laughter, excitement, and unforgettable moments. The event was a celebration of life, hope, and togetherness.
As a gesture of love and encouragement, gifts were distributed to all patients, bringing smiles to their faces and making the day even more special for them and their families.
The event saw active participation from around 100 patients and their parents, making it a truly memorable and impactful gathering.
TSCS remains dedicated to its mission of creating a healthier, more hopeful future for individuals living with Sickle Cell Disease, continuing to stand by them with care, commitment, and compassion.
The Thalassemia and Sickle Cell Society (TSCS) participated in the International Yoga Day celebrations organized by National Institute for the Empowerment of Persons with Intellectual Disabilities (NIEPID) on June 20, 2025, at Kanha Shanti Vanam, Cheguru Village. A group of 75 members from TSCS joined over 3,500 Divyangjans for a collective yoga session.
The event featured cultural performances, an art exhibition, a job fair, and the distribution of sewing machines to mothers of Divyangjans. NIEPID provided excellent accommodation, food, and transport. It was a joyful and inspiring experience for all participants.
We are pleased to share that the Rotary Club of Lake District Moinabad has generously donated ₹5,00,000 on June 20, 2025, in support of our proposal, “Towards a Thalassemia-Free Generation: Sponsorship of Prenatal Diagnosis in Carrier Couples.”
Our heartfelt thanks to:
Your support brings us one step closer to a Thalassemia-free future.
Initiation of Prenatal Diagnosis Test for Thalassemia/Sickle Cell Carrier Status in Pregnant Women
Kamala Hospital and Research Centre, a unit of the Thalassemia & Sickle Cell Society (TSCS), Hyderabad, has taken a significant step toward the prevention of genetic blood disorders by initiating Prenatal Diagnosis (PND) testing for couples identified as Thalassemia or Sickle Cell carriers. This initiative is an essential component of the society’s comprehensive prevention program aimed at reducing the birth of children affected with Thalassemia Major and Sickle Cell Anemia.
Through its ongoing antenatal screening program, TSCS identifies carrier couples early in pregnancy. When both partners are found to be carriers, the unborn child has a 25% chance of being affected in each pregnancy. In such cases, TSCS offers prenatal diagnostic testing during the first trimester, in collaboration with Fernandez Foundation, Hyderabad.
This initiative not only empowers families with crucial genetic health information but also reinforces TSCS’s mission to prevent new cases of Thalassemia and Sickle Cell Anemia through early detection and timely intervention, ultimately contributing to a Thalassemia/Sickle Cell Anemia-free future.
TSCS is the only NGO in India to offer this facility for the prevention of both Thalassemia and Sickle Cell Anemia.
