The Thalassemia and Sickle Cell Society (TSCS), Hyderabad, observed World Sickle Cell Day on 28th June 2025 with a heartwarming and empowering celebration dedicated to children and families affected by Sickle Cell Disease. The event served as a reminder of the strength within this community and the importance of awareness, care, and compassion.

The event began with a gracious Welcome Address by Dr. Chandrakant Agarwal, President of TSCS, who extended his heartfelt greetings to all the attendees. He reiterated TSCS’s steadfast commitment to improving the lives of those affected by hemoglobin disorders and called for greater awareness, early screening, and community participation in addressing Sickle Cell challenges across India.

This was followed by an inspiring Message by Dr. Suman Jain, Chief Medical Research Officer and Secretary, TSCS. Dr. Jain praised the resilience of the children and families present and emphasized the role of TSCS not only in clinical care but also in emotional and social support. She encouraged everyone to continue spreading awareness and standing together in solidarity for a better future.

The program was further enriched by two thought-provoking motivational talks.
Mrs. Surbhi Sharma, Assistant Professor of Law at NALSAR University of Law, who is Sickle Cell Warrior, emphasized the importance of legal empowerment, patients’ rights, and the role of inclusive public policy in healthcare access.
Dr. Subodh Kumar Karmanker, MBBS, RIMS Adilabad, who is Sickle Cell Warrior brought in valuable insights from the field, speaking about the challenges and solutions for managing Sickle Cell Disease, especially in tribal and underserved communities.

Adding joy to the occasion, fun and games were organized for the young patients, filling the room with laughter, excitement, and unforgettable moments. The event was a celebration of life, hope, and togetherness.

As a gesture of love and encouragement, gifts were distributed to all patients, bringing smiles to their faces and making the day even more special for them and their families.

The event saw active participation from around 100 patients and their parents, making it a truly memorable and impactful gathering.

TSCS remains dedicated to its mission of creating a healthier, more hopeful future for individuals living with Sickle Cell Disease, continuing to stand by them with care, commitment, and compassion.

The Thalassemia and Sickle Cell Society (TSCS) participated in the International Yoga Day celebrations organized by National Institute for the Empowerment of Persons with Intellectual Disabilities (NIEPID) on June 20, 2025, at Kanha Shanti Vanam, Cheguru Village. A group of 75 members from TSCS joined over 3,500 Divyangjans for a collective yoga session.

The event featured cultural performances, an art exhibition, a job fair, and the distribution of sewing machines to mothers of Divyangjans. NIEPID provided excellent accommodation, food, and transport. It was a joyful and inspiring experience for all participants.

We are pleased to share that the Rotary Club of Lake District Moinabad has generously donated ₹5,00,000 on June 20, 2025, in support of our proposal, “Towards a Thalassemia-Free Generation: Sponsorship of Prenatal Diagnosis in Carrier Couples.” 

Our heartfelt thanks to:

Initiation of Prenatal Diagnosis Test for Thalassemia/Sickle Cell Carrier Status in Pregnant Women
Kamala Hospital and Research Centre, a unit of the Thalassemia & Sickle Cell Society (TSCS), Hyderabad, has taken a significant step toward the prevention of genetic blood disorders by initiating Prenatal Diagnosis (PND) testing for couples identified as Thalassemia or Sickle Cell carriers. This initiative is an essential component of the society’s comprehensive prevention program aimed at reducing the birth of children affected with Thalassemia Major and Sickle Cell Anemia.

Through its ongoing antenatal screening program, TSCS identifies carrier couples early in pregnancy. When both partners are found to be carriers, the unborn child has a 25% chance of being affected in each pregnancy. In such cases, TSCS offers prenatal diagnostic testing during the first trimester, in collaboration with Fernandez Foundation, Hyderabad.

This initiative not only empowers families with crucial genetic health information but also reinforces TSCS’s mission to prevent new cases of Thalassemia and Sickle Cell Anemia through early detection and timely intervention, ultimately contributing to a Thalassemia/Sickle Cell Anemia-free future.
TSCS is the only NGO in India to offer this facility for the prevention of both Thalassemia and Sickle Cell Anemia.

On May 12, 2025, the Thalassemia and Sickle Cell Society (TSCS), Hyderabad, commemorated World Thalassemia Day and International Nurses Day with great fervor and purpose. To mark this significant occasion, TSCS organized a Continuing Medical Education (CME) program titled “Thalassemia and Sickle Cell Anemia – An Overview” specifically designed for nurses and lab technicians associated with the TSCS Antenatal Screening Project in the Medchal–Malkajgiri district of Telangana.

The CME aimed to enhance awareness and understanding of haemoglobin disorders among frontline healthcare providers, aligning with TSCS’s core mission to STOP THALASSEMIA through prevention and early detection. The session was attended by approximately 25 nurses and 15 lab technicians, including staff members from TSCS and healthcare professionals involved in the district-level screening initiatives.

The event commenced with a warm welcome address by Mrs. Ratnavali Kottapalli, a dedicated pillar of TSCS, who greeted the dignitaries and participants and highlighted the importance of collaborative efforts in eradicating Thalassemia.

Dr. Suman Jain, Chief Medical and Research Officer and Secretary of TSCS, delivered an insightful presentation on the diagnosis and management of Thalassemia and Sickle Cell Anemia, underlining the critical role of early screening and regular follow-ups.

The Chief Guest of the event, Dr. Banoth Sathyavathi, MD (Anesthesia) and Deputy DM&HO of Medchal–Malkajgiri district, delivered the keynote address. She emphasized the importance of empowering nurses and lab technicians with knowledge about blood disorders and encouraged them to actively participate in TSCS’s prevention strategies.

Renowned Pediatric Oncologist Dr. V. Sandhya from Rainbow Children’s Hospital provided a clear and engaging explanation of the genetic basis of Thalassemia and Sickle Cell Anemia, while Dr. Mamatha, Research Scientist, elaborated on the patterns of inheritance and prevention strategies for these disorders.

A special moment of the event was the felicitation of Mrs. Priyadarshini, Senior Staff Nurse at TSCS, in recognition of her unwavering service and dedication to Thalassemia and Sickle Cell Anemia patients for over two decades. All TSCS nurses were also honored with tokens of appreciation as a gesture of gratitude for their invaluable contribution to patient care and awareness efforts.

The event concluded on a powerful note, reiterating that antenatal screening remains a cornerstone in the prevention of Thalassemia and Sickle Cell Anemia, and that trained, informed healthcare providers are essential to achieving a future free from these inherited blood disorders.

The Thalassemia & Sickle Cell Society (TSCS) commemorated World Thalassemia Day 2025, on 8th May 2025 with a series of impactful events, including an awareness walk and a special program involving Thalassemia children and their parents. The event featured a panel discussion on “Management, Prevention, and Cure of Thalassemia,” aimed at educating and engaging the community.

Renowned singer and Indian Idol contestant Ms. Ragini Shinde also joined the occasion, adding inspiration and encouragement for the children and families.

This year’s global theme by TIF – “Together for Thalassemia: Uniting Communities, Prioritizing Patients” – was at the heart of the celebrations.

As part of ongoing advocacy efforts, Dr. Chandrakant Agarwal, President of TSCS, met with Shri Jishnu Dev Varma, Hon’ble Governor of Telangana, to seek continued support for Thalassemia prevention initiatives.
To mark the significance of the day, the TSCS building was illuminated in red, symbolizing solidarity and hope for a Thalassemia-free future.

On the occasion of World Thalassemia Day 2025, a special program was organized in association with the Indian Academy of Pediatrics, Khammam on 03rd May 2025. The event was graced by the presence of the Chief Guest, Shri Ramasahayam Raghuram Reddy, Hon’ble Member of Parliament, Khammam

24th Feb 2025, Kamala Hospital and Research Centre for Thalassemia and Sickle Cell Patients (KHRCTSCS), a unit Thalassemia & Sickle Cell Society (TSCS), Hyderabad, had the honor of hosting Professors Antonio Piga and Dimitris Farmakis, our esteemed scientific collaborators from Thalassemia International Federation (TIF), Cyprus.

This visit plays a crucial role in our ongoing efforts to establish TIF Collaborating Centres in India, fostering global partnerships to enhance research and improve care for Thalassemia and Sickle Cell Disease. Strengthening these alliances will help advance treatment protocols, improve healthcare accessibility, and ultimately elevate the quality of life for patients worldwide.

Dr. Chandrakant Agarwal, President, Dr. Suman Jain, Chief Medical Research Officer and Secretary along with support from Multidisciplinary team and Team TSCS whose dedication made this cite visit a success.

Together, we are making strides toward a better future for Thalassemia and Sickle Cell patients!